Detalhe da pesquisa
1.
Labour market participation and sick leave among patients diagnosed with myasthenia gravis in Denmark 1997-2011: a Danish nationwide cohort study.
BMC Neurol
; 16(1): 224, 2016 Nov 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-27855651
2.
The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia.
Hum Mutat
; 34(11): 1449-57, 2013 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-23913485
3.
Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.
J Child Health Care
; 26(3): 407-421, 2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-33998314
4.
Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.
J Child Neurol
; 34(2): 104-112, 2019 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-30518279
5.
Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.
J Child Neurol
; 34(4): 210-215, 2019 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-30642225
6.
Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries.
J Neurol
; 264(4): 709-723, 2017 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-28175989
7.
European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences.
J Neuromuscul Dis
; 3(4): 517-527, 2016 11 29.
Artigo
em Inglês
| MEDLINE | ID: mdl-27911335
8.
How Narrative Journalistic Stories Can Communicate the Individual's Challenges of Daily Living with Amyotrophic Lateral Sclerosis.
Patient
; 8(1): 41-9, 2015 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-25231830
9.
Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational.
PLoS Curr
; 52013 Jan 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-23330068
10.
[Journalistic narrative can complement health professional understanding in rehabilitation]. / Journalistisk fortælling kan øge sundhedsprofessionel indsigt i rehabilitering.
Ugeskr Laeger
; 174(36): 2079-81, 2012 Sep 03.
Artigo
em Da
| MEDLINE | ID: mdl-22944327
11.
Living and ageing with spinal muscular atrophy type 2: observations among an unexplored patient population.
Dev Neurorehabil
; 13(1): 10-8, 2010 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-20067341
12.
206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.
Neuromuscul Disord
; 25(9): 727-38, 2015 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-26099652
13.
Consensus statement on standard of care for congenital muscular dystrophies.
J Child Neurol
; 25(12): 1559-81, 2010 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-21078917
14.
The European NeuroMuscular Centre (ENMC): 20 years on .
Neuromuscul Disord
; 23(4): 375-6, 2013 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-23420008
15.
184th ENMC International Workshop: pain and fatigue in neuromuscular disorders: 20-22 May 2011, Naarden, The Netherlands.
Neuromuscul Disord
; 23(12): 1028-32, 2013 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-23932382
16.
Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population.
Pediatr Rehabil
; 8(1): 17-28, 2005.
Artigo
em Inglês
| MEDLINE | ID: mdl-15799132
17.
Physical capacity in non-ambulatory people with Duchenne muscular dystrophy or spinal muscular atrophy: a longitudinal study.
Dev Med Child Neurol
; 44(9): 623-32, 2002 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-12227617